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Introduction We aimed to develop a decision aid to support shared-decision making between physicians and women with average breast cancer risk when deciding whether to participate in breast cancer screening. Methods We included women at average risk of breast cancer and physicians involved in supporting the decision of breast cancer screening from an Academic Hospital in Buenos Aires, Argentina. We followed the International Patient Decision Aid Standards to develop our decision aid. Guided by a steering group and a multidisciplinary consultancy group including a patient advocate, we reviewed the evidence about breast cancer screening and previous decision aids, explored the patients' information needs on this topic from the patients' and physicians' perspective using semi-structured interviews, and we alpha-tested the prototype to determine its usability, comprehensibility and applicability. Results We developed the first prototype of a web-based decision aid to use during the clinical encounter with women aged 40 to 69 with average breast cancer risk. After a meeting with our consultancy group, we developed a second prototype that underwent alpha-testing. Physicians and patients agreed that the tool was clear, useful and applicable during a clinical encounter. We refined our final prototype according to their feedback. Conclusion We developed the first decision aid in our region and language on this topic, developed with end-users' input and informed by the best available evidence. We expect this decision aid to help women and physicians make shared decisions during the clinical encounter when talking about breast cancer screening.
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Introducción. La deuda económica durante la residencia en cirugía general puede afectar el desempeño profesional, las decisiones de vida y el bienestar psicológico. La información disponible en Colombia es limitada. El objetivo de este estudio fue cuantificar la deuda económica del residente de cirugía general, identificar los factores asociados y evaluar su efecto en el bienestar psicológico. Métodos. Estudio de corte transversal analítico. Se invitó a 380 residentes a diligenciar una encuesta sobre los aspectos relacionados con su deuda económica y se utilizó el WHO-index para evaluar su bienestar psicológico. Resultados. Un total de 259 residentes participaron en el estudio (67,6 %). El 56 % posee una deuda económica promedio de COP $88.000.000 ((US$21.826)). Un alto nivel de endeudamiento se relacionó con el año de residencia, el tipo de institución (privada) y la solicitud de préstamos. Se identificó algún trastorno mental en 14,7 % y un bajo nivel de bienestar psicológico en 56,4 % de los participantes. No se identificó ninguna asociación entre una elevada deuda económica y el bajo bienestar psicológico. Conclusiones. La deuda económica tiene un efecto sobre los residentes. El endeudamiento de los residentes de cirugía en Colombia es altamente prevalente, y no se correlaciona con un pobre bienestar psicológico. La autodeterminación favorece el bienestar psicológico en el posgrado en cirugía general. Existe la necesidad de educación financiera en los residentes. Se requieren nuevos estudios que evalúen las causas del pobre bienestar psicológico.
Introduction. Financial debt during surgery residency can affect professional performance, life decisions, and psychological well-being. The information available in Colombia is limited. The objective of this study is to quantify the financial debt of the general surgery resident, identify the associated factors and evaluate their effect on psychological well-being. Methods. A cross-sectional study was carried out. A total of 380 residents were invited to complete a survey on aspects related to their financial debt, and the WHO-index to evaluate their psychological well-being. Results. A total of 259 residents participated in the study (67.6%). 56% have an average economic debt of $88,000,000 COP (US$21,826). High debt was related to level of residence, type of institution (private), and loan application. Some mental disorder was identified in 14.7% and a low level of psychological well-being in 56.4% of the participants. No association was identified between high financial debt and low psychological well-being. Conclusions. Economic debt has an effect on residents. Financial debt among surgical residents in Colombia is highly prevalent; however, it does not correlate with poor psychological well-being. Self-determination favors psychological well-being in the postgraduate course in general surgery. Likewise, the need for financial education in residents is imminent. New studies are required that thoroughly evaluate the causes of poor well-being.
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Humans , General Surgery , Economics , Psychological Well-Being , Training Support , Education, Medical, GraduateABSTRACT
Introducción: el acceso a los servicios de salud en Paraguay, está determinado por varios tipos de barreras. Por ello, es preciso describir el impacto que tienen las políticas públicas y sus implicancias en la mitigación de las mismas. Objetivo: describir el acompañamiento diferenciado y su contribución al apoyo socio emocional, adhesión al tratamiento y acceso a servicios de salud en el área de atención a personas varones que viven con el VIH. Metodología: estudio de carácter cualitativo, descriptivo, con entrevistas semi estructuradas y muestra no probabilística, dirigida e intencional; Resultados: este estudio cualitativo exploró las experiencias de personas viviendo con VIH que recibieron acompañamiento psicosocial diferenciado en un servicio de atención integral. Los participantes destacaron la importancia del acompañamiento para afrontar la crisis posterior al diagnóstico. La orientación presencial, escucha empática y seguimiento facilitaron la vinculación y adherencia al servicio de salud y al tratamiento antirretroviral. El apoyo psicosocial fue clave para desmitificar ideas erróneas sobre el VIH/SIDA, empoderarse sobre su estado serológico y mejorar la calidad de vida. Se enfatizó el rol de los grupos de pares para brindar contención. Algunos participantes reportaron experiencias previas de revelación no consentida y vulneración de confidencialidad. El acompañamiento psicosocial diferenciado resultó fundamental para facilitar la inserción y permanencia de las personas con VIH en los servicios de atención integral (adhesión al tratamiento). Conclusiones: el acompañamiento psicosocial diferenciado resultó clave para facilitar la vinculación y adherencia en personas con VIH. La atención integral requiere identificar situaciones particulares, establecer relaciones de confianza y comunicación efectiva. El apoyo inicial es fundamental brindando contención ante el impacto emocional del diagnóstico. El seguimiento continuo es esencial dada la doble discriminación. La confidencialidad y capacidad de generar vínculos empáticos son elementos centrales. Los factores mencionados favorecen la adhesión al tratamiento. Los resultados sugieren que estas prácticas psicosociales pueden optimizar modelos de atención integral a personas con VIH.
Introduction: access to healthcare services in Paraguay is influenced by various barriers. Thus, it is essential to describe the impact of public policies and their implications in mitigating these barriers. Objective: to describe the differentiated support and its contribution to socio-emotional support, therapeutic adherence, and access to healthcare services in the area of care for males living with HIV. Methodology: a qualitative, descriptive study with semi-structured interviews and a non-probabilistic, directed, and intentional sample. Results: this qualitative study explored the experiences of individuals living with HIV who received differentiated psychosocial support in an integrated care service. Participants emphasized the importance of support in coping with the post-diagnosis crisis. In-person guidance, empathetic listening, and follow-up facilitated engagement and adherence to healthcare services and antiretroviral treatment. Psychosocial support played a critical role in debunking misconceptions about HIV/AIDS, empowering individuals regarding their serostatus, and improving their quality of life. The role of peer groups in providing emotional support was emphasized. Some participants reported previous experiences of non-consensual disclosure and confidentiality breaches. Differentiated psychosocial support was essential in promoting the integration and retention of people with HIV in integrated care services (therapeutic adherence). Conclusions: differentiated psychosocial support was crucial in facilitating the engagement and adherence of individuals with HIV. Comprehensive care necessitates identifying specific situations, establishing trust-based relationships, and effective communication. Initial support is vital for providing emotional support in the face of the diagnostic impact. Ongoing follow-up is essential due to the dual discrimination faced. Confidentiality and the ability to build empathetic relationships are central elements. The aforementioned factors favor adherence to treatment. The results suggest that these psychosocial practices can enhance models of comprehensive care for people with HIV.
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ABSTRACT Objective: To develop and validate predictive models to estimate the number of COVID-19 patients hospitalized in the intensive care units and general wards of a private not-for-profit hospital in São Paulo, Brazil. Methods: Two main models were developed. The first model calculated hospital occupation as the difference between predicted COVID-19 patient admissions, transfers between departments, and discharges, estimating admissions based on their weekly moving averages, segmented by general wards and intensive care units. Patient discharge predictions were based on a length of stay predictive model, assessing the clinical characteristics of patients hospitalized with COVID-19, including age group and usage of mechanical ventilation devices. The second model estimated hospital occupation based on the correlation with the number of telemedicine visits by patients diagnosed with COVID-19, utilizing correlational analysis to define the lag that maximized the correlation between the studied series. Both models were monitored for 365 days, from May 20th, 2021, to May 20th, 2022. Results: The first model predicted the number of hospitalized patients by department within an interval of up to 14 days. The second model estimated the total number of hospitalized patients for the following 8 days, considering calls attended by Hospital Israelita Albert Einstein's telemedicine department. Considering the average daily predicted values for the intensive care unit and general ward across a forecast horizon of 8 days, as limited by the second model, the first and second models obtained R² values of 0.900 and 0.996, respectively and mean absolute errors of 8.885 and 2.524 beds, respectively. The performances of both models were monitored using the mean error, mean absolute error, and root mean squared error as a function of the forecast horizon in days. Conclusion: The model based on telemedicine use was the most accurate in the current analysis and was used to estimate COVID-19 hospital occupancy 8 days in advance, validating predictions of this nature in similar clinical contexts. The results encourage the expansion of this method to other pathologies, aiming to guarantee the standards of hospital care and conscious consumption of resources.
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Resumo O Brasil tem apresentado elevado percentual de homicídio e mortes por intervenção legal. Este artigo faz parte de um estudo qualitativo de casos múltiplos sobre vítimas indiretas que perderam parentes por homicídio devido à ação de agentes de segurança e de policiais no Rio de Janeiro. Os dados provêm de quatro entrevistas individuais com familiares de pessoas mortas por policiais e três familiares de policiais vítimas de homicídio, que foram submetidos à análise temática. Os depoimentos revelaram os impactos da perda do familiar na saúde das vítimas indiretas, como o intenso sofrimento mental e a repercussão negativa em ocupações humanas, como trabalho, lazer, sono e cuidado em saúde. Ante a experiência traumática, o apoio das instituições é limitado, ao passo que grupos ativistas e entidades ligadas aos direitos humanos são relatados, pelos entrevistados, como de grande ajuda na elaboração da dor da perda, sobretudo no grupo dos que perderam seus entes pela ação policial. O estudo indica a necessidade de pesquisas sobre as lacunas entre os equipamentos e políticas públicas e as necessidades das vítimas indiretas.
Abstract Brazil has recorded a high percentage of homicides and deaths due to legal intervention. This article is part of a qualitative multiple case study about indirect victims who lost relatives to homicide perpetraded by security agents and police officers in Rio de Janeiro. Data were collected in four individual interviews with family members of people killed by police officers and three family members of police officers who were victims of homicide, and then subjected to thematic analysis. The testimonies revealed the major impacts of the loss of a family member on the indirect victim's health, such as intense mental suffering and the negative impacts on human occupations such as work, leisure, health care, and sleep. Institutional support is limited in the face of the traumatic experience, whereas activist groups and entities tied to human rights advocacy are of great help in overcoming the pain of loss, especially for those who have lost their family members to the police. Further research is needed about the gaps between public facilities and policies and the needs of indirect victims.
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Resumo Objetivo Analisar a função dos apoios sociais formal e informal na prática de atividade física durante o tempo livre de trabalhadores. Métodos Estudo transversal realizado com 395 trabalhadores técnicos administrativos em uma universidade pública. Os dados foram coletados utilizando: questionário sociodemográfico, Questionário de Atividade Física Habitual de Baecke e Escala de Apoio Social para a prática de Atividade Física. Os dados foram analisados por meio de estatística descritiva, teste t de Student, teste d de Cohen e Análise de Variância. Resultados Os participantes que referiram algum tipo de apoio para atividade física no tempo livre (92,2%) apresentaram maiores médias no escore de atividade física. O apoio institucional (58,0%) teve função de destaque como potencial influenciador em comparação ao apoio de chefias imediatas (14,2%), embora elas tenham exercido um certo diferencial entre os trabalhadores da manutenção. Conclusão O apoio social tem função importante na promoção da atividade física no tempo livre de trabalhadores. As iniciativas institucionais de estímulo ao comportamento ativo no ambiente de trabalho carecem de alinhamento com o incentivo por parte dos superiores imediatos, para que sejam mais efetivas.
Resumen Objetivo Analizar la función del apoyo social formal e informal en la práctica de actividad física durante el tiempo libre de trabajadores. Métodos Estudio transversal realizado con 395 trabajadores técnicos administrativos de una universidad pública. Los datos se recopilaron utilizando un cuestionario sociodemográfico, el Cuestionario de Actividad Física Habitual de Baecke y la Escala de Apoyo Social para la Práctica de Actividad Física. Los datos se analizaron mediante estadística descriptiva, test-T de Student, prueba d de Cohen y análisis de varianza. Resultados Los participantes que relataron algún tipo de apoyo para actividad física en el tiempo libre (92,2 %) presentaron mayores promedios en el puntaje de actividad física. El apoyo institucional (58,0 %) tuvo una función destacada como posible influenciador en comparación con el apoyo de jefes directos (14,2 %), aunque estos últimos hayan ejercido cierto diferencial entre los trabajadores de mantenimiento. Conclusión El apoyo social tiene una función importante en la promoción de la actividad física en el tiempo libre de trabajadores. Las iniciativas institucionales de estímulo a un comportamiento activo en el ambiente de trabajo necesitan estar alineadas con el incentivo por parte de los superiores inmediatos para que sean más efectivas.
Abstract Objective To analyze the role of formal and informal social support in the practice of physical activity during workers' leisure time. Methods A cross-sectional study carried out with 395 technical administrative workers at a public university. Data were collected using sociodemographic questionnaire, Baecke Habitual Physical Activity Questionnaire and Physical Activity and Social Support Scale. Data were analyzed using descriptive statistics, Student's t test, Cohen's d test and Analysis of Variance. Results Participants who reported some type of support for physical activity in their leisure time (92.2%) had higher means in the physical activity score. Institutional support (58.0%) had a prominent role as a potential influencer compared to support from immediate superiors (14.2%), although they had a certain differential among maintenance workers. Conclusion Social support plays an important role in promoting physical activity in workers' leisure time. Institutional initiatives to encourage active behavior in the work environment need to be aligned with encouragement by immediate superiors so that they are more effective.
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SUMMARY OBJECTIVE: The aim of this study was to examine the relationship between caregiver burden, family adaptation, partnership, growth, affection, and resolve score, anxiety levels, and the perceived social support of the relatives of patients who had open heart surgery. METHODS: Volunteers among the relatives of patients who had open heart surgery in our cardiovascular surgery clinic and were followed up in the first 3 months were included in the study. The cardiovascular surgeons recorded the sociodemographic data of the relatives of the patients and directed them to a psychiatry clinic for further evaluation. The caregiver burden scale, family adaptation, partnership, growth, affection, and resolve scale, anxiety level scale, and perceived social support scale were applied to the relatives of the patients who participated in the study. RESULTS: Within the scope of the study, a total of 51 individuals, 29.4% (n=15) men and 70.6% (n=36) women, were included in the evaluation. The participants' ages ranged from 32 to 68 years, with an average age of 48 years. There was a statistically significant relationship between the caregiving burden scale score and the scale scores other than age (p<0.05). There was a statistically significant difference in terms of caregiving burden scale score, working status, physical and psychological problems, changes in home life, and changes in family relationships (p<0.05). CONCLUSION: The fact that the need for security and intimacy is related to anxiety and depression can be interpreted as the caregiving problems of the relatives of the patients who think that their patients are safe and feel closer to the intensive care personnel will decrease. Their depression and anxiety levels will also decrease.
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RESUMO. A implementação da reforma psiquiátrica é tema de recorrentes discussões no campo da saúde mental. Essa implementação não é padrão para todas as localidades brasileiras, uma vez que depende dos recursos materiais, humanos e aspectos culturais de cada região. A esta singularidade retoma-se a noção de arranjo assistencial. Este trabalho se propôs a conhecer a implementação numa regional de saúde da região Sul. Foi realizado um mapeamento descritivo, seguindo método empírico-fenomenológico. Descrevem-se serviços que acolhem todos os públicos, mas que encontram dificuldades no trabalho com a população usuária de álcool e outras drogas. Foram elencados sete dispositivos assistenciais: acolhimento, grupos terapêuticos, oficinas, atendimentos individuais, uso da medicação, encaminhamentos e reuniões de equipe. Expõe-se a ideia de que a estrutura de um serviço de saúde mental não pode ser estanque. Os arranjos assistenciais estão relacionados às vivências e soluções criativas e humanas como também práticas irrefletidas e normatizadoras na atenção do sofrimento mental.
RESUMEN. La implementación de la reforma psiquiátrica no se encuentra estandarizada para todas las regiones brasileras, una vez que eso depende de recursos materiales, humanos y de aspectos culturales. Por cuenta de esta singularidad, se retoma la noción de arreglo asistencial. En este trabajo se propone conocer la implementación en una regional de salud de sur de Brasil. Se realizó un mapeo descriptivo, siguiendo el método empírico-fenomenológico. Se describen servicios que acogen a todos los públicos, pero que encuentran dificultades en el trabajo con usuarios de alcohol y drogas. Fueran enumerados siete dispositivos asistenciales: Acogimiento, grupos terapéuticos, talleres, atendimientos individuales, uso de medicación, encaminamientos y reuniones de equipo. Se expone la idea de que la estructura de un servicio de Salud Mental no puede ser hermética. Los arreglos asistenciales están relacionados con las vivencias y soluciones creativas y humanas como también prácticas irreflexivas y normalizadoras en la atención del sufrimiento mental.
ABSTRACT. The psychiatric reform is not standard in all Brazilian places, as it depends on different factors such as material, human and cultural aspects of each region. As for its singularity, it is seen as a care arrangement. This article aims to study the psychosocial care network on a regional health department in south Brazil. A descriptive mapping has been performed, following the empirical-phenomenological method. The services described welcome the entire community, people from all walks of life, but when it comes Drug and Alcohol addicted, the approach becomes more challenging. There have been seven care services listed: Hosting, Therapeutic Groups, Workshops, Individual Treatment, Medication usage, Referrals and Support Group Meetings. The approach for care arrangement is related to the creative experiences and human solutions as well as thoughtless and normative practices in the attention of mental suffering.
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Humans , Male , Female , Adult , Middle Aged , Patient Care Team , Health Services , Mental Health Services , Psychiatry , Therapeutics/psychology , Pharmaceutical Preparations , Substance Abuse Detection/psychology , User Embracement , Binge Drinking/complications , Prescription Drug OveruseABSTRACT
Objetivo:Investigar a relevância da abordagem de suporte básico de vida aos estudantes nas escolas públicas e privadas. Método:Trata-se de um trabalho constituído através de um estudo descritivo, exploratório, por intermédio de uma revisão sistemática, utilizandoestratégias qualitativas de pesquisa. Ao todo, nove artigos foram escolhidos, cujos critérios foram inclusão, exclusão e éticos. Posteriormente houve a leitura dos textos completos e descarte de conteúdos que fugiam da temática. Utilizou-se como base de dados a Biblioteca Virtual em Saúde e a PUBMED (Serviço da U. S. National Library of Medicine). Resultados:Verificou-se que os estudantes que tiveram contato com a temática Suporte Básico de Vida, por meio de simulações e questionários, se mostraram mais preparados para salvar vidas, prevenir acidentes e reduzir danos. Visto que, as emoções e o desenvolvimento de habilidades foram diretamente ligadas, pois, as emoções positivas contribuíram para maior adesão das informações e desenvolvimento de habilidades. Considerações Finais: Assim sendo, os estudantes entendem a relevância de abordar esse assunto e com treinamento contínuo nas escolas a longo prazo irá manter a expertise dos alunos, garantindo chances altas para salvar uma vida.
Objective:To investigate the relevance of the basic life support approach to students in public and private schools. Method:This is a work constituted through a descriptive, exploratory study, through an integrative review, using qualitative research strategies. In all, nine articles were chosen, whose criteria were inclusion, exclusion and ethical. Subsequently, the complete texts were read and contents that deviated from the theme were discarded. The Virtual Health Library and PUBMED (Service of the U.S. National Library of Medicine) were used as a database. Results:It was found that students who had contact with the theme Basic Life Support, through simulations and questionnaires, were more prepared to save lives, prevent accidents and reduce harm. Since emotions and skill development were directly linked, as positive emotions contributed to greater adherence to information and skill development. Final considerations:Therefore, students understand the relevance of addressing this subject and with continuous training in schools in the long term, students' expertise will be maintained, guaranteeing high chances of saving a life.
Objetivo:Investigar la pertinencia del abordaje de soporte vital básico para estudiantes de escuelas públicas y privadas. Método: Este es un trabajo constituido a través de un estudio descriptivo, exploratorio, a través de una revisión integradora, utilizando estrategias de investigación cualitativa. En total, se eligieron nueve artículos, cuyos criterios fueron de inclusión, exclusión y éticos. Posteriormente, se leyeron los textos completos y se descartaron los contenidos que se desviaban del tema. Se utilizó como base de datos la Virtual Health Library y PUBMED (Service of the U.S. National Library of Medicine). Resultados: Se constató que los estudiantes que tuvieron contacto con el tema Soporte Básico de Vida, a través de simulacros y cuestionarios, estaban máspreparados para salvar vidas, prevenir accidentes y reducir daños. Dado que las emociones y el desarrollo de habilidades estaban directamente relacionados, las emociones positivas contribuyeron a una mayor adherencia a la información y al desarrollo de habilidades. Consideraciones Finales: Por lo tanto, los estudiantes entienden la relevancia de abordar este tema y con la formación continua en las escuelas a largo plazo, se mantendrá la experiencia de los estudiantes, garantizando altas posibilidades de salvar una vida
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Cardiopulmonary Resuscitation , Schools , TeachingABSTRACT
O objetivo deste artigo é apresentar uma visão geral de múltiplas evidências, levantadas de forma sistemática na literatura, sobre processos de desproteção de crianças, adolescentes e suas famílias, bem como estratégias de proteção e atuação durante a crise sanitária causada pela Covid-19 e no contexto pós-pandêmico. Para tanto, foram selecionados 13 artigos de revisão, entre 2020 e 2023, os quais trazem os principais aspectos que incidem nas desproteções de crianças e adolescentes, afetando a saúde mental, a convivência familiar e comunitária, bem como estratégias de intervenção para o enfrentamento dessas situações. Assim, este estudo traz uma discussão que pode ser subsídio para que profissionais do campo da proteção infantojuvenil possam planejar ações diante dos reflexos da crise pandêmica, política, social e econômica nos últimos tempos. Os efeitos das desproteções ligadas à insegurança de renda, à falta de acesso aos serviços, à redução de autonomia e a problemas de saúde mental ampliaram desproteções relacionais e contextos de violência. Por outro lado, o acesso a serviços e políticas públicas, com apoio às famílias, é o que a literatura destaca para ampliar a proteção infantojuvenil. Portanto, é fundamental identificar demandas para a busca de atuações com foco na melhoria das ofertas de serviços e na promoção de espaços de convivências protetivas.
The objective of this study is to present an overview of multiple evidence, systematically collected in the literature, on processes of deprotection for children, adolescents and their families, as well as protection and action strategies during the health crisis caused by Covid-19 and in the post-pandemic context. To this end, 13 review articles were selected, between 2020 and 2023, which bring the main aspects that affect the deprotection of children/adolescents, affecting mental health, family and community coexistence, as well as intervention strategies to combat these issues. Thus, this article brings a discussion that can provide support for professionals in the field of child and youth protection to plan actions in light of the consequences of this pandemic, political, social and economic crisis in recent times. The effects of lack of protection linked to income insecurity, lack of access to services, reduced autonomy and mental health problems have increased relational lack of protection and contexts of violence. On the other hand, access to services and public policies, with support for families, is what the literature highlights to expand child and youth protection. Therefore, it is essential to identify demands to seek actions focused on improving service offerings and promoting protective spaces.
El objetivo de este estudio es presentar un panorama de múltiples evidencias, recogidas sistemáticamente en la literatura, sobre procesos de desprotección de niños, niñas, adolescentes y sus familias, así como estrategias de protección y acción durante la crisis sanitaria provocada por el Covid-19 y en el contexto pospandemia. Para ello se seleccionaron 13 artículos de revisión, entre 2020 y 2023, que traen los principales aspectos que inciden en la desprotección de niños/adolescentes, afectando la salud mental, la convivencia familiar y comunitaria, así como estrategias de intervención para combatir estas situaciones. Así, este artículo proporciona una discusión que puede brindar apoyo a los profesionales del campo de la protección de niños y jóvenes para planificar acciones ante las consecuencias de esta pandemia, crisis política, social y económica de los últimos tiempos. Los efectos de la desprotección vinculados a la inseguridad de ingresos, la falta de acceso a servicios, la reducción de la autonomía y los problemas de salud mental han aumentado la desprotección relacional y los contextos de violencia. Por otro lado, el acceso a servicios y políticas públicas, con apoyo a las familias, es lo que destaca la literatura para ampliar la protección de niños y jóvenes. Por lo tanto, es fundamental identificar demandas para buscar acciones enfocadas a mejorar la oferta de servicios y promover espacios protectores de convivencia.
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ABSTRACT Objective: To evaluate the combined impact of videofluoroscopic swallow study (VFSS) and therapeutic feeding and swallowing interventions on clinical outcomes in children with oropharyngeal dysphagia (OPD). Methods: This was an uncontrolled longitudinal analytical study in which OPD patients were evaluated before and after VFSS. Children ≤ 24 months of age diagnosed with OPD in a clinical setting and undergoing VFSS for investigation and management of OPD were included in the study. The study participants received therapeutic feeding and swallowing interventions after having undergone VFSS, being followed at an outpatient clinic for pediatric dysphagia in order to monitor feeding and swallowing difficulties. Respiratory and feeding outcomes were compared before and after VFSS. Results: Penetration/aspiration events were observed in 61% of the VFSSs (n = 72), and therapeutic feeding and swallowing interventions were recommended for 97% of the study participants. After the VFSS, there was a reduction in the odds of receiving antibiotic therapy (OR = 0.007) and in the duration of antibiotic therapy (p = 0.014), as well as in the odds of being admitted to hospital (p = 0.024) and in the length of hospital stay (p = 0.025). A combination of oral and enteral feeding became more common than oral or enteral feeding alone (p = 0.002). Conclusions: A high proportion of participants exhibited penetration/aspiration on VFSS. Therapeutic feeding and swallowing interventions following a VFSS appear to be associated with reduced respiratory morbidity in this population.
RESUMO Objetivo: Avaliar o impacto conjunto da videofluoroscopia da deglutição (VFD) e intervenções terapêuticas de alimentação e deglutição nos desfechos clínicos em crianças com disfagia orofaríngea (DOF). Métodos: Trata-se de um estudo analítico longitudinal não controlado em que pacientes com DOF foram avaliados antes e depois da VFD. Foram incluídas no estudo crianças com idade ≤ 24 meses e diagnóstico clínico de DOF, submetidas à VFD para a investigação e manejo da DOF. Os participantes do estudo receberam intervenções terapêuticas de alimentação e deglutição após terem sido submetidos à VFD, sendo então acompanhados em um ambulatório de disfagia pediátrica para o monitoramento das dificuldades de alimentação e deglutição. Os desfechos respiratórios e alimentares foram comparados antes e depois da VFD. Resultados: Eventos de penetração/aspiração foram observados em 61% das VFD (n = 72), e intervenções terapêuticas de alimentação e deglutição foram recomendadas a 97% dos participantes do estudo. Após a VFD, houve uma redução das chances de receber antibioticoterapia (OR = 0,007) e da duração da antibioticoterapia (p = 0,014), bem como das chances de internação hospitalar (p = 0,024) e do tempo de internação (p = 0,025). A alimentação por via oral e enteral em conjunto tornou-se mais comum do que a alimentação exclusivamente por via oral ou enteral (p = 0,002). Conclusões: Houve alta proporção de crianças que apresentaram penetração/aspiração na VFD. As intervenções terapêuticas de alimentação e deglutição após a VFD parecem estar associadas à redução da morbidade respiratória nessa população.
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Introdução: o nascimento de um bebê prematuro, por vezes, necessita de internação em unidade de terapia intensiva neonatal, o que resulta na mudança de toda dinâmica familiar. Isso ocorre devido ao longo período de hospitalização para o bebê e consequente permanência dos pais no ambiente hospitalar. Objetivo: conhecer os desafios da prematuridade e o papel do apoio social na percepção das mães durante o internamento do seu filho em uma unidade de terapia intensiva neonatal. Metodologia: estudo de abordagem qualitativa, cujos dados foram coletados mediante entrevistas, com sete mães, entre março e agosto de 2018. Os dados foram submetidos a análise de conteúdo proposta por Bardin. Resultados: verificou-se que entre os desafios mais comuns enfrentados pelas mães durante o período de internação estão relacionados ao medo da perda do filho hospitalizado, o apoio da equipe de enfermagem e da família as principais estratégias para enfrentar este momento. Conclusão: o reconhecimento dos desafios enfrentados e o apoio social por familiares e pela equipe de enfermagem são fundamentais a fim de minimizar as dificuldades enfrentadas pelas famílias dos recém-nascidos durante o processo de hospitalização.
Introduction: the birth of a premature baby sometimes requires hospitalization in a neonatal intensive care unit, which results in a change in all family dynamics. This occurs due to the long period of hospitalization for the baby and the consequent permanence of the parents in the hospital environment. Objective: to know the challenges of prematurity and the role of social support in the perception of mothers during their child's hospitalization in a neonatal intensive care unit. Methodology: study with a qualitative approach, whose data were collected through interviews with seven mothers, between March and August 2018. The data were submitted to content analysis proposed by Bardin. Results: it was found that among the most common challenges faced by mothers during the period of hospitalization are related to the fear of losing the hospitalized child, the support of the nursing team and the family are the main strategies to face this moment. Conclusion: recognition of the challenges faced and social support by family members and the nursing team are essential in order to minimize the difficulties faced by families of newborns during the hospitalization process.
Introducción: el nacimiento de un bebé prematuro en ocasiones requiere hospitalización en una unidad de cuidados intensivos neonatales, lo que resulta en cambios en toda la dinámica familiar. Esto ocurre debido al largo período de hospitalización del bebé y la consecuente estancia de los padres en el ambiente hospitalario. Objetivo: comprender los desafíos de la prematuridad y el papel del apoyo social en la percepción de las madres durante la hospitalización de su hijo en una unidad de cuidados intensivos neonatales. Metodología: estudio cualitativo, cuyos datos fueron recolectados a través de entrevistas a siete madres, entre marzo y agosto de 2018. Los datos fueron sometidos al análisis de contenido propuesto por Bardin. Resultados: se encontró que entre los desafíos más comunes que enfrentan las madres durante el período de hospitalización están relacionados con el miedo a perder a su hijo hospitalizado, siendo el apoyo del equipo de enfermería y de la familia las principales estrategias para afrontar este momento. Conclusión: el reconocimiento de los desafíos enfrentados y el apoyo social por parte de los familiares y del equipo de enfermería son fundamentales para minimizar las dificultades que enfrentan las familias de los recién nacidos durante el proceso de hospitalización.
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@#BACKGROUND: Prolonged invasive respiratory support and extracorporeal membrane oxygenation (ECMO) in patients requiring urgent lung transplantation (ULTx) present significant challenges to clinical practice due to severe underlying diseases and complex conditions. The aim of the study was to report the clinical outcomes of patients who received ULTx and followed the perioperative rehabilitation protocol implemented in a lung transplant center. METHODS: A retrospective analysis was conducted in ULTx patients who required preoperative invasive mechanical ventilation (IMV) and ECMO between January 2018 and January 2023. Data were retrieved from electronic medical records at our lung transplant center. RESULTS: Fourteen patients (mean age 57.43±10.97 years; 12 males, 2 females) underwent ULTx with bridging ECMO and IMV. The mean body mass index was 23.94±3.33 kg/m², and the mean Acute Physiology and Chronic Health Evaluation (APACHE) II score was 21.50±3.96. The Nutritional Risk Screening 2002 (NRS 2002) scores were ≥3. ULTx was performed after an 8.5-day waiting period (interquartile interval [IQR] 5.0-26.5 d). Following the surgeries, the average lengths of ECMO and IMV were 1.0 (IQR 1.0-2.0) d and 5.0 (IQR 3.0-7.3) d, respectively. The total length of hospital stay was 60.1±30.8 d, with an average intensive care unit stay of 38.3±22.9 d and post-operative hospitalization stay of 45.8±26.1 d. Two patients died within 30 d after ULTx, with a 30-day survival rate of 85.71%. CONCLUSION: Patients receiving ULTx showed an acceptable short-term survival rate, validating the practicality and safety of the treatment protocols implemented in our center.
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Introducción: El aumento en la esperanza de vida se ha convertido en una realidad, en una problemática y en un reto para los países en desarrollo como Colombia, marcado por determinantes sociales dentro de los cuales la población adulta mayor se ve ampliamente afectada. Objetivo: Describir la percepción del adulto mayor y su familia acerca de las redes sociales de apoyo formales e informales, que contribuyen en la reducción de la pobreza. Materiales y métodos: Se realizó un estudio cualitativo con enfoque fenomenológico. Participaron 22 adultos mayores, 3 hombres y 19 mujeres entre los 60 y 89 años, dos cuidadores y un empleado administrativo de la institución en Neiva (Huila). Resultados: Los hallazgos se enmarcaron bajo tres cuatro categorías instauradas previa revisión teórica: precepción de envejecimiento, estructura de las redes sociales de apoyo, dinámica familiar y percepción de redes sociales de apoyo; además, se obtuvieron durante el estudio emergieron tres categorías emergentes: la pobreza más allá del concepto económico, entre lo espiritual y emocional como red de apoyo y la resignificación del trabajo en el adulto mayor como una opción. Conclusiones: Los adultos mayores perciben las redes sociales de apoyo formales e informales como necesarias para su bienestar físico, espiritual y emocional, además, identifican la resignificación del trabajo como una opción de vida desde sus capacidades instrumentales, junto con la espiritualidad, la cual se fortalece a lo largo de sus vidas y al interior de sus familias.
Introduction: The increase in life expectancy has become a reality, a problem, and a challenge for developing countries such as Colombia, marked by social determinants in which the elderly population is largely affected. Objective: Describe the perception of older adults and their families regarding formal and informal social support networks that contribute to poverty reduction. Materials and methods: A qualitative study using a phenomenological approach was conducted. Twenty-two older adults, three men and 19 women, between 60 and 89 years old; two caregivers, and an administrative employee at the institution in Neiva (Huila) participated. Results: The findings were framed under four categories established after a theoretical review: perception of aging, structure of social support networks, family dynamics, and perception of social support networks. Three categories emerged during the study: Poverty beyond the economic concept, between the spiritual and emotional as a support network, and the resignification of work in the elderly as an option. Conclusions: Older adults perceive formal and informal social support networks as something necessary for their physical, spiritual, and emotional well-being. In addition, they identify the resignification of work as a life option based on their instrumental capabilities, along with spirituality, which is strengthened throughout their lives and within their families.
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Objetivo: compreender as vivências de pacientes oncológicos a partir do diagnóstico e as estratégias adotadas. Métodos: trata-se de uma pesquisa de natureza qualitativa e transversal, de caráter exploratória e descritiva.A amostra foi constituída por 10 mulheres com câncer assistidas por uma associação de apoio a pacientes com câncer em João Pessoa/PB, selecionadas por amostragem não probabilística por conveniência. Para a coleta dos dados utilizou-se um questionário sociodemográfico e de saúde, e a entrevista semiestruturada, pautada no método História de Vida. Os dados sociodemográficos foram analisados através de estatística descritiva (frequência e porcentagem), e os dados provenientes da entrevista foram analisados pela técnica de Análise de Conteúdo temática, conforme proposta por Bardin. A média de idade das mulheres foi de 61,8 anos. Surgiram 4 categorias e 12 subcategorias. Resultados: o diagnóstico de câncer provocou impactos negativos na vida dos pacientes e na vida dos seus familiares. Ter uma rede de apoio é uma importante estratégia de enfrentamento utilizada pelas pacientes, devido ao sofrimento causado pelo câncer. Conclusão:Evidenciou-se a importância de estratégias de enfrentamento do sofrimento do paciente oncológico, sobretudo com relação à rede de apoio, sendo esta a categoria de maior destaque ente todas as encontradas.
Objective: to understand the experiences of cancer patients based on the diagnosis and the strategies adopted. Methods: this is a qualitative and transversal research, exploratory and descriptive. The sample consisted of 10 women with cancer assisted by a support association for cancer patients in João Pessoa/PB, selected by non-probabilistic convenience sampling. To collect data, a sociodemographic and health questionnaire was used, as well as a semi-structured interview based on the life history method. Sociodemographic data were analyzed using descriptive statistics (frequency and percentage), and data from the interview were analyzed using the Thematic Content Analysis technique proposed by Bardin. The average age of the women was 61.8 years. Four categories and 12 subcategories emerged. Results: the diagnosis of cancer caused negative impacts on the lives of patients and their families. Having a support network is an essential coping strategy used by patients due to the suffering caused by cancer. Conclusion: The importance of strategies for coping with the suffering of cancer patients was highlighted, especially concerning the support network, this being the most prominent category among all those found.
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Humans , Female , Middle Aged , Aged , Disease , Psychosocial Support SystemsABSTRACT
Abstract Objective: The objectives of this study were to evaluate an automated device for ventilatory support based on AMBU manufactured in March 2020. Methods: The ESSI-1 INC was evaluated through pulmonary mechanics and physiology parameters through compensatory spirometer tests (TISSOTs), and an artificial lung Model5600i Dual Adult PNEU VIEW SYSTEM; it was also compared to the anesthetic ventilatory support equipment (AEONMED 7500) in porcine models, measuring ventilatory, hemodynamic and gasometric parameters. Results: This equipment (ESSI-1 INC) was successfully tested by mechanical and biological models, such as pigs in which its performance was evaluated in terms of variability of tidal volume, ventilation frequency, and I/E relationship versus the manual performance of two medical interns. All the results turned out as expected and were satisfactory. Conclusions: It is safe and effective equipment and should be tested and used in diverse clinical conditions to standardize the ventilatory safety and care of patients who require it.
Resumen Objetivo: Evaluar un dispositivo automatizado para la asistencia ventilatoria basado en un AMBU manufacturado en Marzo del 2020. Métodos: El ESSI-1 INC fue evaluado por medio de parámetros fisiológicos y mecánica pulmonar a través de pruebas de espirómetro compensatorios (TISSOT); pulmón artificial (Modelo 5600i Dual Adult PNEU VIEW SYSTEM); así como su desempeño comparado a la máquina de anestesia (AEONMED 7500) en modelos porcinos, midiendo criterios ventilatorios, hemodinámicos y gasométricos. Resultados: Este equipo (ESSI-1 INC) fue exitosamente probado por modelos mecánicos y biológicos, tales como cerdos donde su desempeño fue evaluado en términos de la variabilidad del volumen tidal, frecuencia ventilatoria, y relación I/E versus el desempeño manual de dos médicos. Todos los resultados finalizaron como se esperaba de forma satisfactoria. Conclusiones: Es un equipo seguro y efectivo, el cual debería ser probado y usado en distintas condiciones clínicas para estandarizar la seguridad ventilatoria y cuidado de pacientes que lo requieran.
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Uno de los principales problemas durante la dentición mixta es la determinación de la futura discrepancia entre tamaño dentario y el espacio disponible. Para predecir el ancho mesiodistal de los dientes permanentes no erupcionados se han introducido diferentes métodos de análisis. Objetivo: El propósito de este estudio fue comparar el método Tanaka-Johnston con una nueva ecuación de regresión para predecir el ancho mesiodistal de caninos y premolares permanentes no erupcionados en una población de la región de Valparaíso, Chile. Material y método: Este estudio fue realizado en la Facultad de Odontología de la Universidad de Valparaíso, desde octubre de 2022 a junio de 2023 (8 meses), la muestra estuvo compuesta por 202 modelos de estudio del departamento de ortodoncia (91 hombres y 111 mujeres) en el rango de edad de 11 -20 años. Resultados: Se demostró que el método elaborado por Lara-Sandoval presenta mayor fiabilidad respecto a las medidas mesiodistales reales de los pacientes (ICC 0,773 para maxilar y 0,762 para mandíbula), en comparación con el método de Tanaka-Johnston (ICC 0,665 para maxilar y 0,623 para mandíbula). No existen diferencias significativas entre los valores reales y el método de Lara-Sandoval. Conclusión: El método de Lara-Sandoval es mejor que el propuesto por Tanaka-Johnston para determinar el ancho mesiodistal de caninos y premolares para esta muestra. Es necesario validar este método en otras regiones del país para ser utilizado con mayor seguridad que el ya existente como método estándar nacional.
One of the main orthodontic problems in mixed dentition is the determination of future tooth and size arch discrepancy. In order to predict the mesiodistal widths of unerupted permanent teeth different methods of analyses have been introduced. The aim of this study is to compare the Tanaka-Johnston analysis with a new regressive equation to predict the mesiodistal width of unerupted permanent canines and premolars in a Chilean population sample, from Valparaíso region. This study was conducted at the Universidad de Valparaíso Dental Faculty, from october 2022 to june 2023 (8 months), and the sample comprised historical dental casts from 202 patients (91 boys and 111 girls) in the age range of 11-20 from the orthodontics department. All the patients are from the Valparaíso region, Chile. The results show that the predictions of the new regressive equation method are closer to the actual mesiodistal measurements of the patients (ICC 0,773 for maxilla and 0,762 for mandible), compared to the Tanaka- Johnston method (ICC 0,665 for maxilla and 0,623 for mandible). There are no significant differences between the real values and the Lara-Sandoval method. Lara-Sandoval method is better than the one proposed by Tanaka-Johnston to determine the mesiodistal width of canines and premolars in this sample population. It is necessary to validate this method in other regions of the country to be used with greater security than the ones that already exists as a national standard method.
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O presente estudo é um recorte de uma pesquisa mais ampla sobre a experiência da maternidade de mulheres brasileiras migrantes. Ele tem como objetivo investigar o apoio recebido por elas no processo de tornar-se mãe. Trata-se de uma pesquisa qualitativa na qual foram realizadas, em 2022, sete entrevistas com mulheres brasileiras que vivenciaram gestação, parto e primeiro ano de vida do filho (a) em Portugal, Reino Unido, Itália, Espanha e França. Os resultados apontam para a relevância da presença de pessoas que compartilham da mesma cultura de origem na construção da maternidade e na rede de apoio durante a perinatalidade. Conclui-se que o distanciamento da rede familiar, de amigos e de referenciais da cultura de origem da mulher migrante gerou o aumento das sobrecargas psíquica e física inerentes à maternidade. Ao mesmo tempo, de acordo com as participantes, o distanciamento da família e da cultura de origem proporcionou maior liberdade e abertura para a construção da maternidade, provendo novas representações culturais que contribuíram para a construção de sua forma de ser mãe.(AU)
This study is a segment of a broader research project on the maternity experience of Brazilian migrant women. It aims to investigate the support received by these women in the process of becoming mothers. It encompasses a qualitative research study involving seven interviews conducted in 2022 with Brazilian women who experienced pregnancy, childbirth, and the first year of their child's life in Portugal, the United Kingdom, Italy, Spain, and France. The findings highlight the importance of having individuals sharing the same cultural background in the construction of motherhood and in the support network during the perinatal period. The distance from the family network, friends, and references of the migrant woman's culture of origin generated an increase in the psychic and physical burdens inherent to motherhood. Simultaneously, according to the participants, distancing from family and their cultural origins provided greater freedom and openness in constructing motherhood, offering new cultural representations that contributed to shaping their way of being mothers. (AU)
El presente estudio es parte de una investigación más amplia acerca de la experiencia de la maternidad de las mujeres migrantes brasileñas. Tiene como objetivo investigar el soporte recibido por ellas en el proceso de convertirse en madre. Se trata de una investigación cualitativa en la que, en 2022, se realizaron siete entrevistas con mujeres brasileñas que vivieron el embarazo, el parto y el primer año de vida de su hijo en Portugal, Reino Unido, Italia, España y Francia. Los resultados apuntan para la relevancia de la presencia de personas que comparten la misma cultura de origen en la construcción de la maternidad y en la red de apoyo durante la perinatalidad. Se concluye que el alejamiento de la red familiar, amigos y puntos de referencia de su cultura de origen de la mujer migrante ha generado un aumento de las sobrecargas psíquicas y físicas inherentes a la maternidad. Al mismo tiempo, según las participantes, el alejamiento de la familia y de la cultura de origen les ha proporcionado una mayor libertad y apertura para la construcción de la maternidad, brindando nuevas representaciones culturales que contribuyeron para la construcción de su forma de ser madre. (AU)
Subject(s)
Humans , Female , Pregnancy , Adult , Pregnancy/psychology , Maternal Behavior , Prenatal Care , Social Support , Perinatal Care , Cultural Factors , Qualitative Research , Human Migration , COVID-19ABSTRACT
Fundamento: el apoyo de familiares y del equipo de salud a los padres cuidadores de sus hijos diabéticos es fundamental para el afrontamiento a los cambios que provoca esta enfermedad en la dinámica familiar. Objetivo: describir la percepción de los padres cuidadores sobre el apoyo familiar y de los Sistemas de Salud en el comienzo de sus hijos con diabetes mellitus tipo 1. Métodos: estudio cualitativo descriptivo realizado mediante entrevista semiestructurada a cuatro padres cuidadores de niños con diagnóstico de diabetes tipo 1. El consentimiento informado fue realizado vía Google Forms y la entrevista fue vía plataforma ZOOM. Las entrevistas tuvieron una duración de 30 minutos. El análisis de las entrevistas se realizó utilizando el programa ATLAS.ti versión 22. Resultados: el comienzo de la enfermedad de los niños fue recibido por los padres con mucha confusión y falta de conocimiento. En cuanto a las redes de apoyo, los padres declararon la soledad como vivencia en el cuidado de los niños y, en relación a los equipos de salud, relataron que está enfocada en los cuidados básicos que tenían que cumplir, como la alimentación y el control glucémico, con ausencia de preocupación por el apoyo emocional. Conclusiones: las necesidades de apoyo desde los equipos de salud, a los padres cuidadores, más allá del control de la enfermedad, es una necesidad explícita desde la evidencia, que aún no ha sido considerada por los Sistemas de Salud. El apoyo debe trascender la familia, con una actuación importante de los profesionales de la salud y todo el contexto en que están insertos los niños, para contribuir a un manejo adecuado de la enfermedad.
Foundation: the support of family members and the health team for parents caring for their diabetic children is essential for facing with the changes that this disease causes in family dynamics. Objective: to describe the perception of parent caregivers about family support and Health Systems at the beginning of their children with type 1 diabetes mellitus. Methods: qualitative descriptive study carried out through semi-structured interviews with four parent caregivers of children with a diagnosis of type 1 diabetes. Informed consent was carried out via Google forms and the interview was via the ZOOM platform. The interviews lasted 30 minutes. The analysis of the interviews was carried out using the ATLAS.ti version 22 program. Results: the beginning of the children's illness was received by parents with much confusion and lack of knowledge. Regarding the support networks, the parents declared loneliness in the experience of caring for the children and, in relation to the health teams, they reported that it is focused on the basic care that they had to fulfill, such as food and hygiene, glycemic control, with absence of concern for emotional support. Conclusions: the support needs from health teams to parent caregivers, beyond disease control, is an explicit need from the evidence, which has not yet been considered by Health Systems. Support must go beyond the family, with important action by health professionals and the entire context in which children are inserted, to contribute to adequate management of the disease.
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Fundamento la COVID-19 tuvo repercusión en el estado biopsicosocial de la población. Entre las actitudes y comportamientos, la discriminación se manifestó como una de las respuestas a diferentes niveles de interrelación personal y social. Objetivo describir la discriminación percibida por pacientes en seguimiento por COVID-19. Métodos estudio descriptivo y transversal, realizado en el periodo septiembre de 2021 a febrero de 2022, con todos los pacientes con seguimiento por COVID-19 (N=89) residentes en el barrio de Tajamar Regalado (Tulcán, Ecuador). Mediante la encuesta se obtuvo información sobre las variables: tipo de institución donde recibió seguimiento médico, percepción de discriminación, apoyo social y apoyo comunitario. Resultados el 60,67 % de los pacientes refirió que casi siempre lamentaba haberse contagiado de COVID-19; el 59,55 %, que siempre sintió ser discriminado por haber padecido la enfermedad; el 40,45 %, que casi siempre consideró importante utilizar medidas de protección para evitar más contagios en su comunidad; el 48,31 % planteó que casi siempre recibió consejería por el personal de salud; y el 59,55 % consideró que su salud mental se vio afectada. Casi la mitad de los pacientes expresó haber recibido un apoyo social muy malo, y el 51,68 % un apoyo social malo parte de las autoridades en particular. Conclusiones durante la pandemia de COVID-19 existió un rechazo social a los pacientes contagiados, el cual provocó afectaciones en la salud mental de estos. Se evidenció una falta de apoyo por parte de la comunidad y las autoridades; y una escasa consejería por el personal de salud.
Foundation COVID-19 had an impact on the population' biopsychosocial state. Among attitudes and behaviors, discrimination manifested itself as one of the responses to different levels of personal and social interrelation. Objective to describe the discrimination perceived by patients being monitored for COVID-19. Methods descriptive and cross-sectional study, carried out from September 2021 to February 2022, in all patients monitored for COVID-19 (N=89) who live in Tajamar Regalado neighborhood (Tulcán, Ecuador). Through the survey, information was obtained on the variables: type of institution where they received medical follow-up, perception of discrimination, social support and community support. Results 60.67% of patients reported that they almost always regretted having been infected with COVID-19; 59.55%, who always felt they were discriminated against for having suffered from the disease; 40.45%, who almost always considered it important to use protective measures to avoid further infections in their community; 48.31% stated that they almost always received counseling from health personnel; and 59.55% considered that their mental health was affected. Almost half of the patients expressed having received very bad social support, and 51.68% received bad social support from the authorities in particular. Conclusions during the COVID-19 pandemic, there was social rejection of infected patients, which caused effects on their mental health. A lack of support from the community and authorities was evident; and little counseling by health personnel.